Living with "The Happy Syndrome" (It Makes You Friendly)

are you ready yeah yeah for your big awesome interview this is gonna be fun yeah who's this my mom hi baby tell me about your mom cause I'm happy about my mom I know you are can you tell about Mom my mom is so cute you're cute too all right my first question for you okay and it's a big important question so let's put on our listening ears did you put on both your listening ears yeah okay mine are on too this first question do you want to be friends yeah yeah tell me about Bess best is my little

sweetheart that's for sure she's my buddy huh yep we like to go shopping together and the besties besties together and everywhere we go she makes a friend to be best friends forever you play together what's it like to make a new best friend because we like to play together what is it like to be brother sister I like playing tag what do you think Rogue playing with my sister and we love brogue oh Rogue why do you love Rogue because it's my best friend forever [Music] best was a miracle baby for u

s we were together nine years before she was born yeah and then we didn't think we'd be able to have another child and Rogue was such an amazing surprise to us and it was especially exciting for us because we knew that best wouldn't be alone in the world and that she would have a sibling and then Rogue came along and we didn't want to put that expectation on his shoulders to be a super supportive brother that's a lot for anybody but I mean they get along so well and they're the best of friends a

nd that means the world to us as parents just knowing that they've got that support for each other and love my favorite thing though my brother is making me happy what does he do that makes you happy he likes to tickle with me and laugh and play together Rogue what's your favorite thing about Bess to play dinosaurs with her how do you play dinosaurs you just stand up and stop stop and run like a dinosaur roar now I have the screen right here and we could see ourselves yeah how do you feel when y

ou see yourself happy why do you feel happy when you see yourself because I see the screen and maybe each other hey hey how are you this is our blog William syndrome is often known as the disorder that makes people friendly would you say that's correct absolutely I know people are inviting her to join their table and excited not frustrated or mad do you ever feel frustrated or mad no just happy what's it like to be happy because we like to be happy do you and your sister ever argue what do you a

nd Rogue argue about sometimes we should laugh and play together and we can roll around you sometimes feel excited oh yeah what does it feel like to be excited because we like to silly like a day I have a question for you if you do feel frustrated what do you do just calm down one two three four did somebody teach you how to count and breathe yeah does that help yeah that makes me calm down I'm really happy that you know how to calm down yeah you just take a deep breath the con town that's to ma

ke me so proud that's make me proud are you proud to know how to calm down yeah you should be that's a really really smart thing you do I'm proud of you I'm proud of you ah thanks we love skipping together yeah you guys like to play a lot together exactly and that's important because it's hard with William cinnamon as they get older it's hard for them to make new friends and so to have a brother she can come home to it makes it nice huh yeah it makes me laugh I'm like boom boom is it you for her

to relate to people a bit younger a bit younger or uh with adults you know and so her age group sometimes it's tough EST yeah yeah that's okay that's a part of growing up huh yeah and we play Rock Paper Scissors ready again I cut your paper let's do it again rock paper scissors oh no what grade are you in second do you remember my mom says I do remember that what's your favorite thing about the second grade my favorite second grade is my best friends what do you do with your best friends in the

second grade I'm playing I was riding a bike I I'm so good riding you rode a bike because it's not tricky yeah but it can be complicated because not everybody's a friend and so we have to teach her about um you know making sure Mommy and Daddy are close by or people we trust we learned about who who do we trust Bess who are safe people like my friends your friends uh-huh and Miss Chris our sister to me yeah yeah exactly what would you like to say to all the people who are watching this video hi

hi everyone hey do you like saying hi to people hey hey hey hey hey hey hey hey how do you hope the people watching this feel happy what can they do to make themselves happy because they're laughing should we make them laugh yeah all right let's make them laughs what is it like to have a child who does have that authentic joy and trust in people but have to teach them that that not everybody deserves that that's hard because you don't so you try to make the world a better place bless you I have

sneezers is the world a bad place or a good place a good place why is it a good place because it's not bad what's the best thing about the world Earth around us we live on earth not Jupiter because we don't live in Jupiter that is true yeah because I don't live in Jupiter or Mars and do you know what I don't live in the sun or moon I like living on Earth Earth is the best yeah it's a beautiful place yeah such a beautiful place it can definitely be complicated because we have to learn about stra

nger danger huh best yeah not everybody's safe we we like the world to be that way but it's not yeah and it just keep me safe what do you like about us or Jupiter that's a really good question I like all of the nice people oh that's nice it is nice and the Earth has lots of beautiful places yeah beautiful people and beautiful communities in the house I agree with you and it has beaches it has mountains and can beaches and lakes and knights are grandpas or Papas or uh teachers like Chris yeah I a

m a teacher and you're right it has great family it has great people the world is a good place yeah like me there's so many cool people out there yeah like look there Vlog on our screen hi Vlog hi vlog wait thanks for watching bye don't forget to subscribe bye you're a really good YouTuber yeah has your mom taught you about Williams syndrome that um that video that you can interview people like oil syndrome you've watched Chris's videos about your friends with Williamson yeah and that really hel

ped you didn't it you are you are in on YouTube and that helped you learn that there's kids just like you huh yeah did that make her happy makes her really happy really happy and we've recently started talking more about Williams syndrome because you go to the doctor a lot huh yeah yeah yeah and we just stay there study you because you're so rare and amazing mm-hmm what is Williams syndrome Williams syndrome is a rare genetic deletion it happens randomly at conception it's not passed down from p

arent to child although best can has a 50 50 chance of passing it down because she already has the deletion and uh it affects mainly the heart but it can affect other parts of the body and they're just the sweetest kids in the whole wide world the cool thing about William syndrome is when we get our kids all together you can tell they have a lot of facial similarities so they'll have the adorable little pixie noses we call it and a lot of her girlfriends will have this gorgeous hair too and you

have a lacy pattern in your eyes uh-huh yeah and angels put my very best fairy dust in her eyes that's what she calls it her suck they put the fairy dust in your eyes is what you say yeah and I like honey mustard do you like jalapeno sauce I do but I don't like jalapeno or um Blame It Hot is it too spicy yeah and then like breathing fire oh you got me the fire I will use the ice power oh thank you for saving me from the fire yeah but now I'm getting kind of cold what do you like about cold I lik

e snow we can build snowmen together yeah yeah like I could do some power snow how do you feel when you sit close to your brother happy a lot happy July in love with him Rogue does best like to give you hugs yes how do you to give her hugs too how do you feel when you give your sister a hug happy and where are where are all these uh what's your favorite thing about hugs my favorite thing about hugs was my mom yeah because they what do you like about hugs though what do they make you feel love lo

ve just love yeah we're big on love huh does best experience love differently than other people I think she does time and instantly be really emotional about it or Another Part of William syndrome that's really kind of cool is with music she can hear certain notes or tones and the next thing I know she's in tears and has having an emotional response to it so she can really feel that the composer was trying to get across and huh you feel deeply don't you yeah and when um people like um will have

real syndrome yeah and then um that people like um Mom and Dad and you guys yeah it's good to have a good supportive Community around you huh yeah what does it like to have a brother who's also your best friend forever because he's my buddy do you have a beard I do have a beard I said and you look like Daddy's hair that's the same what's your favorite thing about Bess oh she's just always fun goofy I think she's really Brave for all that she has to go through yeah we just like to have fun togeth

er and be goofy can you show Chris the daddy face does best like to be goofy oh yeah all the time we're always silly together huh yeah we like having goofy dance parties now I have a few serious questions then we could be silly again okay all right I'm gonna put on my serious face [Music] is it easy or hard to be serious good you're really good at being serious now here's my question okay what is your favorite thing about your family my favorite thing about my family is to make food oh that's ok

ay everybody burps sometimes yeah like sneezing or hiccups thing yeah people sneeze and Hiccup too oh goodness I think I had the hiccups me too all right I'm gonna try to keep my serious face on okay what kind of yeah food do you like to make with your family I didn't make it about family about things I just burped a chill oh what kind of food do you like to make um tamales oh that sounds delicious or like spicy Tomatoes or hot tomatoes do you ever eat a spicy food and then you turn red and you

go and you shoot up and hit the ceiling and I can be a panda you can be a panda yeah look you're a panda you know what I can be an eagle poof I want people to understand that there are complications that come with William syndrome yeah can you talk about some of the difficulties so the number one thing and why best and I like to reach out to so many of the newly diagnosed families is because with their heart complications and they don't really know why anesthesia is a really big concern and so i

f a child goes undiagnosed and then go undergoes anesthesia it can put them in a position to go under cardiac arrest and they don't quite know what causes it so it's important to have a whole cardiac team on standby and so there's lots of families out there that we've reached out to and talked to and said hey your child looks like they have Williams syndrome go get diagnosed uh the coolest thing about your videos is I've actually talked to some parents who they saw your videos and they went and

got their child diagnosed and that helps save a life because with the right care they can go through anesthesia in a much safer fashion so how does William syndrome impact the heart uh well it makes the vessel super narrow and so when best was born she was born with a lot of narrowings and they call it pressure gradients they were super high how would you describe William syndrome to somebody who's never heard of it um I usually tell people that they have some you know Medical issues primarily l

ike with the heart um some cognitive delays and numerous other things it just depends on the specific person but they're always happy they love music they've never met a stranger how much do you love best do you like being silly with your brother yeah like silly stuff [Music] that make me laugh [Applause] does best have any other diagnoses besides Williams syndrome she does she has oh I don't want to mess it up it's p1613 micro duplication and it's very similar in a way so there's uh just issues

with the heart primarily what is your biggest goal for best um just a keep on going um so I think she's a fighter and just to do whatever she has dreams to do what do you want to be when you grow older um hip Hopper why do you want to be a pop star because I'm a movie star is there anything else you want to talk about I talked about dancing a lot you like to dance a lot huh let's dance oh yeah oh yeah go baby boogie boogie boogie boogie boogie do you like this this is my favorite Move Get Funky

dance party in the house what is the best thing about having a great mom because she really likes me number two fans oh number two fan that's right Daddy's your number one fan we just and still do have a firm belief that she was putting her for a purpose and I think to you know make the world happier place and better place and so I always knew that no matter what she she'd come through and she's super strong and then a fighter and we're just super blessed you're a great person a lot of fun to b

e around yeah be around a lot yeah thank you for being my friend thank you for my friend would you like to end the YouTube video yeah okay what would you like to say to everybody thanks for watching bye bye bye forget to subscribe I comment down below if you like this video just comment below and go on YouTube channel if you like this video just go on my video leave a comment you're a really good YouTuber yeah high five hello